Blow Away Cystic Fibrosis
please donate
Next weekend June 3, 2012 is the Great Strides Walk
It is held at Bowdoin Park in Pougkeepsie NY. Registration is at 10 am.
Please join the efforts of thousands to help rid this world of the disease that robbed my daughter of her future.
For over 10 years we have been
"WALKING FOR NIKI"
Cystic fibrosis is an inherited chronic disease
that affects the lungs and digestive system of about 30,000 children and
adults in the United States.
A defective gene and
its protein product cause the body to produce unusually thick, sticky
mucus that:
- clogs the lungs and leads to life-threatening lung infections;
- and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis
lived to attend elementary school. Today, advances in research and
medical treatments have further enhanced and extended life for children
and adults with CF. Many people with the disease can now expect to live
into their 30s, 40s and beyond.
Nicole (27) over the years saw many advancements in treatments to help her manage this disease from the funding for research.She participated in many blind test studies to help in the advancement of treatments. Over the years there have been new drugs to help fight infection,mucus thinners, better digestive aides that all added to the quality of her life.
This is all good, but it's not enough... we need to find the cure!
Science is so close,please help to fund the research.
This year as always,we will continue to fight for other families so they never have to loose this battle.
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